Hello and welcome to our website. Please take a moment to watch our intoductory message (below)

by charity founder Liz Blows.

New SPS Map of the World by Sonia.jpg

SPS Map of the World

Welcome to the SPS Map of the World. If you're a sufferer, friend of someone with SPS, or care for someone with the condition, this is the place to be, the new global village bringing people together. Click the Map to see the World and join a VERY exclusive community!

Video Credit: Chris Blows

Contact Us

Liz Blows

SPS Support Group

Tel: 01482 868881

Email: liz.blows@smssupportgroup.co.uk

* Required

Click the Virgin Money Giving icon (right) to make a donation to the SPS UK and Ireland Support Group and Charity.

Click the FaceBook icon (right) to go to the SPS UK and Ireland home page or click the "Links" link in the banner at the top of the page to view other Facebook sites

BENEFITS BANNER.jpg

Mission Statement

 

This site is solely for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may also be of interest to caregivers, care professionals, researchers (together with advocates for the condition) and the general public.

The support group and charity was set up by Liz Blows with the following aims:

 

(1) The relief of sickness and the protection and preservation of the health of persons affected by Stiff Person Syndrome, together with their families and carers.

​​

(2) On-going education and awareness-raising within the medical profession and the general public of Stiff Person Syndrome.

(3) The promotion of research into the causes, effects, treatment and management of Stiff Person Syndrome.
 

"Stiff Man Syndrome" (SMS) was the name assigned to the condition when first identified in the 1950s by Moersch and Woltman in the USA.  In recent years, the condition has become more widely known as "Stiff Person Syndrome" (SPS).  SPS does not differentiate between sex, colour, or creed, although UK evidence tends to suggest women are most at risk.

SPS is an auto-immune neurological condition. It is unique due to its lack of significant similarity to any other neurological diseases.  Although rare, once observed it is quite unforgettable.

 

However, many neurologists and GPs are still unaware of the condition.  In many cases, the first symptoms are insidious and victims are often initially misdiagnosed with anxiety or depression.

This website and the SPS Map of the World were created by Tony Barr, written and edited by David Blows.

Get Social

Copyright © 2018 Stiff Man Syndrome Charity. All rights reserved

UK Telephone: 01482 868881  

Stiff Man Syndrome UK and Ireland Support Group and Charity: Founded in 1998 by Liz Blows

Stiff Man Syndrome Support Group and Charity: Liz Blows (Chair), 75 Normandy Avenue, Beverley, East Yorkshire, HU17 8PF
Stiff Man Syndrome Support Group and Charity is not-for-profit
Charity Number: 1099206

  • Grey Facebook Icon
  • Grey Twitter Icon
  • Grey Instagram Icon
  • Grey LinkedIn Icon
This site was designed with the
.com
website builder. Create your website today.
Start Now