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News, Photo and Video Archive
November 2018: Tammey Yokum Pyle's best friend - Khloe. She keeps her company and in good spirits when has an infusion
November 4, 2018: Liz Blows doing her bit for Remembrance Day, selling poppies at Morrisons supermarket in Beverley
October 24, 2018: One in a Milllion: First in a special series of videos compiled by Anne Stone Sweet released to mark SPS Rare Disease Day, featuring SPS sufferers.
October 24, 2018: One in a Milllion: Second in a special series of videos compiled by Anne Stone Sweet released to mark SPS Rare Disease Day, featuring SPS sufferers.
September 2018: Liz Blows on holiday in Florence
October 2018: Liz Blows terrorising the natives in Barcelona
September 1, 2018: Scottish Meet-up. In an historic first gathering of SPS-ers from Scotland, about 20 gathered in Glasgow to share their experiences of SPS with like-minded sufferers. Local neurologist Dr. Maria Ferugia (top left) talked about the condition and handed out information leaflets. Also in attendance were SPS UK and Ireland committee man John McFall (second from left) and fellow sufferers Vivian Murphy (second from right) and Colin Edgar (top right).
June 2018: Liz Blows: Video presentation at Findacure mentoring workshop held in London.
April 5, 2018: New Centre for SPS: Dr Scott Newsome and his colleagues this year launched a center for this condition within Johns Hopkins Medicine in Baltimore, USA — which sees more patients with this disease than any other medical institution in the world — to both treat patients and to study them with the goal of developing better treatments in the future. Click the banner to go to the website.
2018: Jacqui Atkinson: Her book detailing her experiences of SPS is available to buy here. All proceeds go to her local hospice, St Oswalds, who helped her cope and treated the illness, together with the SPS UK and Ireland Charity which provided funding for the project. Click the banner to go to the website.
2017: Video: Alastair Kent OBE, head of Rare Disease UK, at the Cambridge Rare Disease summit praising the work of Liz Blows
2012: Video: Liz Blows's message from Rome to SPS sufferers around the world
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